July is…

a. hot and humid
b. the  beginning of yellow jacket season
c. hot… and also humid
d. the last full month before school starts up again in mid-August
e. annoyingly hot and humid
f. a good time to read and think about long blog postings
g. Disability Pride Month
h. all of the above

If you said “h”. you’d be right!!

One in four adults have a disability. That’s 61 million adults in the US! Disability impacts all of us. (Click the graphic or click here to see a neat chart!)

I follow several blogs and a podcast that focus on living with disability, disability advocacy, and by extension, I guess, “Disability Pride Month.” There’s actually a lot of controversy and a variety of opinions about disability pride. Emily Ladau (author and blogger at Words I Wheel By blog) offers an interesting perspective on why Disability Pride Month might not be as worth “celebrating” as other “Pride Months.” Check it out here.

She talks about Ableism. What’s “ableism?” I’m glad you asked! 

It is discrimination of and social prejudice against people with disabilities based on the belief that typical abilities are superior.

In other words, it is the assumption that able-bodied bodies are the “norm” and all others are compared to it and are less than that norm. It’s similar in that way to racism, where Whiteness is the “norm” and privileges accrue to White people just because they are White.  Our society believes that a disability makes a person broken, and that disability is bad, sad, negative, and a problem to be fixed, rather than a normal, inevitable part of the human experience.  

Even though the US has codified disability equality in such federal civil rights laws as the Americans with Disabilities Act, assumptions, misconceptions, and harmful perspectives abound. Much like with racism, ableism is typically invisible, and generally denied or minimalized by people who do not have a disability. 

Some examples I have experienced myself or have witnessed myself:
  • Lack of knowledge about the Americans with Disabilities Act’s civil rights protection; lack of compliance with the law.
  • Failing to incorporate accessibility into the planning and implementation of social media, marketing, and corporate meetings, sometimes even after the PWD (person with a disability) has patiently explained that accessibility is actually required. I can’t tell you how many classes, webinars, and meetings I have participated in … which have denied access by refusing to provide a sign interpreter or captioning.
  • Assuming that disability-related accommodations “cost too much” rather than considering the “cost” of excluding the person from full and equal participation in the meeting. 
  • Believing that disability is either tragic or inspirational. (In the disability community, this is called “Disability porn!”
  • Creating an excellent video but assuming YouTube’s auto captioning is “enough.” (Watch it once… unedited auto-captions can be confusing… and hysterical sometimes!)
  • Forgetting to include PWD “at the table” when making decisions.
  • Assuming mental illness leads to violence; labeling violent behavior as “crazy,” “sick” or “psycho.”
  • Talking to a PWD as if they are incapable of understanding you. Talking about them instead of directly to them. Treating them as if they cannot participate fully.
  • Telling a PWD that you know best what type of accommodation they need, rather than engaging in a conversation with them to find out what works best.
  • Telling or assuming  a PWD that they are “too expensive” to be fully included.
  • Being unable to spend my money to shop because the store has aisles that are too narrow for a power wheelchair. 
  • Being unable to access my church all winter because there are no usable curb cuts and the lawn I usually have to traverse is covered with snow.

Would you like to explore this topic a bit more? Here is a list with links put together by Emily Ladau:

June episodes of The Accessible Stall:

With Roe v. Wade overturned, disabled people reflect on how it will impact them (had the honor of being interviewed for this) 

Celebrating Disability Pride Month With Books for All Ages (excited to be on this list from the New York Public Library!)

The Long Shadow of Eugenics in America (a timely, extremely difficult, very necessary read)

The A-Z of Effective, Inclusive Campaigns (because if you’re going to tell people to vote, you better make your campaigns accessible!)

In ‘Corsicana,’ Will Arbery Puts Art, Family and Down Syndrome Onstage (a truly beautiful show)

In Defence of Garlic in a Jar: How Food Snobs Almost Ruined My Love of Cooking (jarred garlic is also accessibility!)

Japan’s Transit System Gets Serious About Disability Access 

M.T.A. Vows to Make Subways 95% Accessible. It Will Take 33 Years. (big heaving sigh)

Despite a First-Ever ‘Right-to-Repair’ Law, There’s No Easy Fix for Wheelchair Users (wheelchair repairs are the bane of my existence, lucky that my dad is pretty good at coming up with fixes)

Where Food Sustainability and Disability Clash

I’ve spent my whole life pretending to be non-disabled

Being on the red carpet as a wheelchair user was a nightmare.

Disabled people are ‘invisible by exclusion’ in politics, says Assemblymember running to be the first openly autistic member of Congress